Bill Text - HB1484 (2014)

Relative to newborn DNA sequencing.


Revision: March 27, 2014, midnight

HB 1484-FN – AS AMENDED BY THE HOUSE

20Mar2014… 1004h

2014 SESSION

14-2471

01/06

HOUSE BILL 1484-FN

AN ACT relative to newborn DNA sequencing.

SPONSORS: Rep. Kurk, Hills 2

COMMITTEE: Health, Human Services and Elderly Affairs

AMENDED ANALYSIS

This bill prohibits whole-genome DNA sequencing of newborns.

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Explanation: Matter added to current law appears in bold italics.

Matter removed from current law appears [in brackets and struckthrough.]

Matter which is either (a) all new or (b) repealed and reenacted appears in regular type.

20Mar2014… 1004h

14-2471

01/06

STATE OF NEW HAMPSHIRE

In the Year of Our Lord Two Thousand Fourteen

AN ACT relative to newborn DNA sequencing.

Be it Enacted by the Senate and House of Representatives in General Court convened:

1 New Paragraph; Newborn Screening. Amend RSA 132:10-a by inserting after paragraph IV the following new paragraph:

V. No whole-genome DNA sequencing shall be performed pursuant to this chapter unless the general court authorizes such sequencing by statute.

2 Effective Date. This act shall take effect January 1, 2015.

LBAO

14-2471

Amended 03/21/14

HB 1484-FN FISCAL NOTE

AN ACT relative to newborn DNA sequencing.

FISCAL IMPACT:

      The Department of Health and Human Services states this bill, as amended by the House (Amendment #2014-1004h), will have no fiscal impact on state, county, or local revenue or expenditures.

METHODOLOGY:

    The Department of Health and Human Services states the newborn screening laboratory, with which the Department contracts to provide newborn screening, does not perform DNA sequencing. The current standard is that infant blood spots at high risk for Cystic Fibrosis are only further screened for the presence of 39 specific genetic mutations. True DNA sequencing is generally accepted to involve determining the precise order of all nucleotides within a DNA molecule and screening for any mutation. The Department states, because the newborn screening laboratory does not perform DNA sequencing there would be no fiscal impact at this time.