Bill Details - HB1783 (2018)

HB 1783-FN - AS INTRODUCED

 

 

2018 SESSION

18-2205

01/05

 

HOUSE BILL 1783-FN

 

AN ACT relative to newborn screening for Krabbe Leukodystrophy.

 

SPONSORS: Rep. Walz, Merr. 23; Rep. Cushing, Rock. 21; Rep. M. Smith, Straf. 6; Rep. Eaton, Ches. 3; Rep. Itse, Rock. 10; Sen. Carson, Dist 14

 

COMMITTEE: Health, Human Services and Elderly Affairs

 

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ANALYSIS

 

This bill requires newborns to be screened for Krabbe Leukodystrophy.

 

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Explanation: Matter added to current law appears in bold italics.

Matter removed from current law appears [in brackets and struckthrough.]

Matter which is either (a) all new or (b) repealed and reenacted appears in regular type.

18-2205

01/05

 

STATE OF NEW HAMPSHIRE

 

In the Year of Our Lord Two Thousand Eighteen

 

AN ACT relative to newborn screening for Krabbe Leukodystrophy.

 

Be it Enacted by the Senate and House of Representatives in General Court convened:

 

1  Newborn Screening; Globoid Cell Leukodystrophy (Krabbe).  Amend the introductory paragraph of RSA 132:10-a, I to read as follows:

I.  The physician, hospital, nurse midwife, midwife, or other health care provider attending a newborn child shall test a newborn child for metabolic disorders.  Such tests shall include, but not be limited to, phenylketonuria, galactosemia, homocystinuria, maple syrup urine disease, [and] hypothyroidism, and globoid cell leukodystrophy (krabbe).  Additional disorders shall be added to the newborn screening panel based upon, but not limited to, the following considerations:

2  Effective Date.  This act shall take effect 60 days after its passage.

 

LBAO

18-2205

12/1/17

 

HB 1783-FN- FISCAL NOTE

AS INTRODUCED

 

AN ACT relative to newborn screening for Krabbe Leukodystrophy.

 

FISCAL IMPACT:      [ X ] State              [    ] County               [    ] Local              [    ] None

 

 

 

Estimated Increase / (Decrease)

STATE:

FY 2019

FY 2020

FY 2021

FY 2022

   Appropriation

$0

$0

$0

$0

   Revenue

$244,936

$244,936

$244,936

$244,936

   Expenditures

$244,936

$244,936

$244,936

$244,936

Funding Source:

  [    ] General            [    ] Education            [    ] Highway           [ X ] Other - Newborn Screening Fund

 

 

 

 

 

METHODOLOGY:

This bill requires the newborn screening program to include global cell leukodystrophy ("Krabbe Leukodystrophy") on the list of disorders for which screening is required.  All expenses related to the newborn screening program are paid out of the newborn screening fund, which consists of fees paid by hospitals per RSA 132:10-a, II and established in administrative rule He-P 3008.14. The fee level is established by the Department of Health and Human Services, and is based on the yearly cost of testing, analysis, and ancillary activities, divided by the number of births projected in a given year. Accordingly, the cost increases outlined below would result in an increase in the fee for each newborn screening test (currently $71) paid by hospitals and deposited in the newborn screening fund.

 

The Department of Health and Human Services (Department) notes that the current contractor for the newborn screening panel does not have the capacity to test for Krabbe Leukodystrophy, and that the nearest laboratory currently conducting such screening is the New York State Department of Health (NY State).  The Department estimates that NY State would charge $6 per filter paper used in the Krabbe Leukodystrophy screening process.  Based on an average yearly birth number of 12,500 children, the screenings themselves will result in increased expenditures of $75,000 per year.   Additionally, NY State charges $26 for overnight shipping costs Monday through Friday, and $42 on Saturday.  In the aggregate, the 19 birthing hospitals in New Hampshire will result in annual shipping costs of $128,440 for weekday shipping (19 * 5 * 52 * $26) and an additional $41,496 for Saturday shipping (19 * 52 * $42).  The bill's total projected cost, including the cost of the screenings themselves, is therefore $244,936, to be paid out of the newborn screening fund described above.

 

AGENCIES CONTACTED:

Department of Health and Human Services

 

 

Docket

Date Status
Jan. 3, 2018 Introduced 01/03/2018 and referred to Health, Human Services and Elderly Affairs HJ 1 P. 23
Jan. 10, 2018 Public Hearing: 01/10/2018 11:00 AM LOB 205
Jan. 25, 2018 Full Committee Work Session: 01/25/2018 09:00 AM LOB 205
Jan. 25, 2018 Executive Session: 01/25/2018 LOB 205
Committee Report: Inexpedient to Legislate (Vote 15-6; RC)
Feb. 7, 2018 Committee Report: Inexpedient to Legislate for 02/07/2018 (Vote 15-6; RC) HC 5 P. 24
Feb. 8, 2018 Inexpedient to Legislate: MA DV 179-157 02/08/2018 HJ 3 P. 45

Action Dates

Date Body Type
Jan. 10, 2018 House Hearing
Jan. 25, 2018 House Exec Session
House Floor Vote
Feb. 7, 2018 House Floor Vote

Bill Text Revisions

HB1783 Revision: 2375 Date: Dec. 4, 2017, 1:17 p.m.