HB 1783-FN - AS INTRODUCED
HOUSE BILL 1783-FN
AN ACT relative to newborn screening for Krabbe Leukodystrophy.
SPONSORS: Rep. Walz, Merr. 23; Rep. Cushing, Rock. 21; Rep. M. Smith, Straf. 6; Rep. Eaton, Ches. 3; Rep. Itse, Rock. 10; Sen. Carson, Dist 14
COMMITTEE: Health, Human Services and Elderly Affairs
This bill requires newborns to be screened for Krabbe Leukodystrophy.
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Explanation: Matter added to current law appears in bold italics.
Matter removed from current law appears [in brackets and struckthrough.]
Matter which is either (a) all new or (b) repealed and reenacted appears in regular type.
STATE OF NEW HAMPSHIRE
In the Year of Our Lord Two Thousand Eighteen
Be it Enacted by the Senate and House of Representatives in General Court convened:
I. The physician, hospital, nurse midwife, midwife, or other health care provider attending a newborn child shall test a newborn child for metabolic disorders. Such tests shall include, but not be limited to, phenylketonuria, galactosemia, homocystinuria, maple syrup urine disease, [and] hypothyroidism, and globoid cell leukodystrophy (krabbe). Additional disorders shall be added to the newborn screening panel based upon, but not limited to, the following considerations:
HB 1783-FN- FISCAL NOTE
FISCAL IMPACT: [ X ] State [ ] County [ ] Local [ ] None
Estimated Increase / (Decrease)
[ ] General [ ] Education [ ] Highway [ X ] Other - Newborn Screening Fund
This bill requires the newborn screening program to include global cell leukodystrophy ("Krabbe Leukodystrophy") on the list of disorders for which screening is required. All expenses related to the newborn screening program are paid out of the newborn screening fund, which consists of fees paid by hospitals per RSA 132:10-a, II and established in administrative rule He-P 3008.14. The fee level is established by the Department of Health and Human Services, and is based on the yearly cost of testing, analysis, and ancillary activities, divided by the number of births projected in a given year. Accordingly, the cost increases outlined below would result in an increase in the fee for each newborn screening test (currently $71) paid by hospitals and deposited in the newborn screening fund.
The Department of Health and Human Services (Department) notes that the current contractor for the newborn screening panel does not have the capacity to test for Krabbe Leukodystrophy, and that the nearest laboratory currently conducting such screening is the New York State Department of Health (NY State). The Department estimates that NY State would charge $6 per filter paper used in the Krabbe Leukodystrophy screening process. Based on an average yearly birth number of 12,500 children, the screenings themselves will result in increased expenditures of $75,000 per year. Additionally, NY State charges $26 for overnight shipping costs Monday through Friday, and $42 on Saturday. In the aggregate, the 19 birthing hospitals in New Hampshire will result in annual shipping costs of $128,440 for weekday shipping (19 * 5 * 52 * $26) and an additional $41,496 for Saturday shipping (19 * 52 * $42). The bill's total projected cost, including the cost of the screenings themselves, is therefore $244,936, to be paid out of the newborn screening fund described above.
Department of Health and Human Services
|Jan. 3, 2018||Introduced 01/03/2018 and referred to Health, Human Services and Elderly Affairs HJ 1 P. 23|
|Jan. 10, 2018||Public Hearing: 01/10/2018 11:00 AM LOB 205|
|Jan. 25, 2018||Full Committee Work Session: 01/25/2018 09:00 AM LOB 205|
|Jan. 25, 2018||Executive Session: 01/25/2018 LOB 205|
|Feb. 7, 2018||Committee Report: Inexpedient to Legislate for 02/07/2018 (Vote 15-6; RC) HC 5 P. 24|
|Committee Report: Inexpedient to Legislate (Vote 15-6; RC)|
|Feb. 8, 2018||Inexpedient to Legislate: MA DV 179-157 02/08/2018 HJ 3 P. 45|
|Jan. 10, 2018||House||Hearing|
|Jan. 25, 2018||House||Exec Session|
|Feb. 7, 2018||House||Floor Vote|